This page contains links to helpful websites that cover a range of topics on hemophilia treatments, general disease information, and living with hemophilia. There are also links to websites about other bleeding disorders.
Hemophilia Disease Information
- National Hemophilia Foundation – The National Hemophilia Foundation is a nonprofit organization dedicated to research, education, and advocacy for people with bleeding disorders.
- Hemophilia Federation of America – The Hemophilia Federation of America is another nonprofit organization that exists to support patients with hemophilia and other bleeding disorders.
- World Federation of Hemophilia – The World Federation of Hemophilia focuses on improving care globally for patients suffering from hemophilia, von Willebrand disease, factor deficiencies, and other bleeding disorders.
- National Institutes of Health – The National Heart, Lung, and Blood Institute provides a comprehensive overview of hemophilia disease information including sections on treatment, living with hemophilia, and current clinical trials for hemophilia.
- Centers for Disease Control and Prevention – The CDC is another helpful government resource for individuals who want to learn more about hemophilia. Their guide to Hemophilia Treatment Centers (HTCs) provides an overview of treatment centers and a directory for finding the nearest HTC.
- National Human Genome Research Institute – The National Human Genome Research Institute provides a short overview of hemophilia along with a useful list of websites that offer additional information on hemophilia.
Von Willebrand and Other Bleeding Disorders
- National Hemophilia Foundation – In addition to hemophilia, the National Hemophilia Foundation also has pages dedicated to information on Von Willebrand Disease and other bleeding disorders.
- National Institutes of Health – This government resource provides a helpful overview of von Willebrand Disease types and inheritance patterns.
- World Federation of Hemophilia – The World Federation of Hemophilia offers a good summary of bleeding orders and the clotting process.
Government Resources for Chronic Illnesses
- Health Insurance Portability and Accountability Act (HIPAA) – The U.S. Department of Health and Human Services contains material on health information privacy and your rights as a patient.
- Centers for Medicare and Medicaid Services (CMS) – The Centers for Medicare and Medicaid Services website offers a starting place for learning about government help in paying for hemophilia treatment and other publicly funded resources available for people with chronic diseases.